Autism Coverage Bill Fails

Senate’s Move, House Panel’s Inaction Anger Advocates

By Fredrick Kunkle

Washington Post Staff Writer
Thursday, February 12, 2009; Page B07

RICHMOND, Feb. 11 — The Senate has effectively killed a bill that would have required insurers to cover autistic children, pleasing business lobbies that argued against new mandates but enraging parents who vowed revenge at the polls.

The fight over mandating autism coverage has gathered intensity nationwide and resonated especially strongly in Loudoun County and other fast-growing areas of Northern Virginia with high numbers of children.

Anger about the bill’s defeat late Tuesday was magnified by what appeared to be a flip remark by a Northern Virginia lawmaker who had offered qualified backing for the cause. Moments after the vote on the bill concluded a late session, Majority Leader Richard L. Saslaw (D-Fairfax) took the floor.

“I’d inquire of the clerk: Who won?” Saslaw said with a grin. “We had a pool going.”

The Senate clerk replied with a smile: “That’s not appropriate, senator.”

Advocates of the bill thought Saslaw’s question referred to a wager on the bill’s fate.

“Our parents just felt like their kids were made some sort of a joke, an office wager,” said Judith Ursitti, regional director for Autism Speaks, a nonprofit organization.

But Saslaw, who had attempted to broker a compromise on the autism bill, said yesterday that his joke was a victim of bad timing. The office pool he referred to, Saslaw said, concerned the hour at which the Senate’s session would end. Saslaw said it was tradition to wager on the timing of “crossover,” the final session when each chamber concludes work on legislation that must be referred to its counterpart. Saslaw said he regretted the bill’s failure.

“I did everything I could to get this thing out of here,” he said.

More than 100 people, including educators, lawmakers, and families with autistic children, assembled in July at a community center in Lansdowne on the Potomac to organize their campaign. They enlisted not only other parents of autistic children but also their friends in what became known as the Loudoun Project. They traveled by the busload to the capital and trooped to lawmakers’ offices wearing huge buttons saying, “Autism Votes in Virginia,” often with their autistic children in tow.

“We promised a daily presence,” said Pasquale “Pat” DiBari, a Leesburg resident and early organizer. “We really went above and beyond to tell legislators our personal stories.”

Allying themselves with Autism Speaks, parents entered about 20,000 supporters into their database, and they flooded lawmakers’ inboxes with more than 7,000 e-mails, winning bipartisan backing from Dels. Robert G. Marshall (R-Prince William) and David E. Poisson (D-Loudoun). Sen. Jill Holtzman Vogel (R-Winchester) carried a bill in the Senate.

But the legislation met resistance from the business community, which argued that a recession was the worst time to impose a costly mandate.

“I’m very sympathetic to the parents and children caught up in this terrible condition,” said Hugh Keogh, president of the Virginia Chamber of Commerce. “[But] our numbers show a decreasing amount of employers who are able to offer health-care insurance every year, and mandates are a part of that.”

Reginald N. Jones, a lobbyist for the Virginia Association of Health Plans, said one estimate suggested that the costs of autism coverage could be as much as $40 million a year in Virginia, despite a provision that would cap expenses at $36,000 per child per year.

“It would probably become the second most expensive mandate in Virginia, and maybe the first,” Jones said.

The bill quickly met resistance. The House Commerce and Labor Committee took no action on it, infuriating advocates who noted the unpleasant irony that the bill suffered the same fate as some of their children. “To receive the silent treatment was really stunning,” DiBari, 40, said.

Jodi Folta, 39, an accountant who lives in Ashburn, said advocates were mystified by the actions of Del. Thomas Davis Rust (R-Fairfax), a member of the Commerce and Labor Committee. Rust appeared to be a friend of the cause, turning up at a rally on the capitol grounds, but he showed no effort to advance it, Folta said.

“He’s on our unhappy list,” Folta said.

Rust did not respond to a message at his office seeking comment.

In the Senate, Vogel sought compromise by limiting the mandated coverage to children younger than 12. Saslaw cut the age further, to 6 years old. But efforts at compromise failed.

“I’ve struggled with this bill, and I think everybody here has struggled with this bill,” said Sen. Kenneth W. Stolle (R-Virginia Beach) before asking that the bill go back to the Finance Committee, where it would effectively die this year. “The legislative process is an ugly process, and this has been particularly ugly.”

Staff writer Tim Craig contributed to this report.

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  233. Hey! I just wanted to ask if you ever have any issues with hackers? My last blog (wordpress) was hacked and I ended up losing a few months of hard work due to no backup. Do you have any solutions to prevent hackers?

  234. I know this if off topic but I’m looking into starting my own weblog and was curious what all is required to get set up? I’m assuming having a blog like yours would cost a pretty penny? I’m not very internet savvy so I’m not 100% certain. Any tips or advice would be greatly appreciated. Many thanks

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  236. I was curious if you ever thought of changing the layout of your site? Its very well written; I love what youve got to say. But maybe you could a little more in the way of content so people could connect with it better. Youve got an awful lot of text for only having one or two images. Maybe you could space it out better?

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  260. This design is spectacular! You certainly know how to keep a reader amused. Between your wit and your videos, I was almost moved to start my own blog (well, almost…HaHa!) Excellent job. I really loved what you had to say, and more than that, how you presented it. Too cool!

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  262. Hi! I know this is somewhat off topic but I was wondering which blog platform are you using for this website? I’m getting sick and tired of WordPress because I’ve had issues with hackers and I’m looking at options for another platform. I would be great if you could point me in the direction of a good platform.

  263. Heya! I just wanted to ask if you ever have any problems with hackers? My last blog (wordpress) was hacked and I ended up losing several weeks of hard work due to no back up. Do you have any methods to protect against hackers?

  264. Hi there this is somewhat of off topic but I was wondering if blogs use WYSIWYG editors or if you have to manually code with HTML. I’m starting a blog soon but have no coding skills so I wanted to get advice from someone with experience. Any help would be enormously appreciated!

  265. My coder is trying to persuade me to move to .net from PHP. I have always disliked the idea because of the costs. But he’s tryiong none the less. I’ve been using Movable-type on a number of websites for about a year and am concerned about switching to another platform. I have heard excellent things about blogengine.net. Is there a way I can import all my wordpress content into it? Any kind of help would be greatly appreciated!

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  270. Have you ever thought about publishing an ebook or guest authoring on other blogs? I have a blog based upon on the same subjects you discuss and would love to have you share some stories/information. I know my readers would enjoy your work. If you’re even remotely interested, feel free to shoot me an email.

  271. Hello, i read your blog from time to time and i own a similar one and i was just curious if you get a lot of spam feedback? If so how do you prevent it, any plugin or anything you can advise? I get so much lately it’s driving me crazy so any support is very much appreciated.

  272. Awesome blog! Is your theme custom made or did you download it from somewhere? A design like yours with a few simple tweeks would really make my blog stand out. Please let me know where you got your design. With thanks

  273. Heya this is somewhat of off topic but I was wanting to know if blogs use WYSIWYG editors or if you have to manually code with HTML. I’m starting a blog soon but have no coding expertise so I wanted to get guidance from someone with experience. Any help would be greatly appreciated!

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  278. Hi there are using WordPress for your blog platform? I’m new to the blog world but I’m trying to get started and create my own. Do you need any coding knowledge to make your own blog? Any help would be really appreciated!

  279. I was wondering if you ever considered changing the layout of your blog? Its very well written; I love what youve got to say. But maybe you could a little more in the way of content so people could connect with it better. Youve got an awful lot of text for only having 1 or two images. Maybe you could space it out better?

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  282. Have you ever considered creating an ebook or guest authoring on other blogs? I have a blog based upon on the same ideas you discuss and would really like to have you share some stories/information. I know my viewers would enjoy your work. If you’re even remotely interested, feel free to shoot me an email.

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  291. Have you ever thought about publishing an ebook or guest authoring on other blogs? I have a blog based upon on the same subjects you discuss and would love to have you share some stories/information. I know my subscribers would value your work. If you are even remotely interested, feel free to send me an email.

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  308. Hmm is anyone else encountering problems with the images on this blog loading? I’m trying to determine if its a problem on my end or if it’s the blog. Any feed-back would be greatly appreciated.

  309. The other day, while I was at work, my cousin stole my iPad and tested to see if it can survive a 25 foot drop, just so she can be a youtube sensation. My iPad is now destroyed and she has 83 views. I know this is totally off topic but I had to share it with someone!

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  313. Hi! This post could not be written any better! Reading this post reminds me of my previous room mate! He always kept talking about this. I will forward this page to him. Pretty sure he will have a good read. Thanks for sharing!

  314. Hey there this is somewhat of off topic but I was wanting to know if blogs use WYSIWYG editors or if you have to manually code with HTML. I’m starting a blog soon but have no coding skills so I wanted to get advice from someone with experience. Any help would be greatly appreciated!

  315. Hey there! This is kind of off topic but I need some advice from an established blog. Is it hard to set up your own blog? I’m not very techincal but I can figure things out pretty fast. I’m thinking about setting up my own but I’m not sure where to begin. Do you have any ideas or suggestions? Thank you

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